Saturday, March 15, 2008

The Future

I am posting this blog from a sweet lady named Mary Canada from ALZTalk.org.
The Future
6:38 AM on Mar. 13, 2008

Once in awhile I'll let myself think about the future, and what it's going to be like, if the cure doesn't arrive soon. I've chatted to enough caregivers over the past two years, and heard what their loved ones are going through....to know what exactly is ahead for me and many others, if the cure isn't soon here. A friend sent me this lovely website that I'd like to share with you.

http://www.parentswish.com

http://www.alzinfo.org/alztalk/blog_entry.php?user=MaryCanada&blogentry_id=17

**this is the very reason why I am committed to being the caregiver to my Mother. Many blessing to all who have this path to walk before them.

With much love and respect,

Rainbow



AGRESSION FUELS THE FIRE, COMPASSION CALMS THE SOUL

Photobucket

EVERYDAY CHALLENGES

I've only been a caregiver to my Mother since the death of my father last April of 2007. My world, as I knew it, was immediately turned topsy turvy after the family service and tending to the aftermath of such an event.

In today's society we all have stress levels in which we are battling just to survive and live a productive life. Since my life has changed directions in the middle of my journey, I have had to learn to adjust to the loss of a father and face the unknown of this disease that has inflicted my Mother and change my life of living from another state, leaving behind my husband, who is also a caregiver to his own ailing father, as well as keep my own sanity living in this situation. Mother became aggressive, verbally abusive after the funeral of her husband of 50 years, and this was not my Mother's nature as I knew her to be while growing up in such a loving and nurturing home.

I panicked, became depressed, angry, furious at times and worn down from the events that were spinning so fast that I felt like I was lost in the world and no one was caring about it. Making the decisions and reorganizing the life of someone I love so dearly and thought would always be there for me when I needed comfort and care is, at best to say, an adjustment.

The tables of time have turned on me, throwing me into a tailspin of chaos and fear of the changes in my life as I knew. When I would be impatient, she would become nervous. When I would be angry and frustrated, she would show the same emotions and lash out at me. This was not working well for me or her. I called in re-enforcement of my siblings to help us out. I would call to tell them and explain to them of "our day" and ask for help with whatever decisions needed to be made at the time. As the days of adjustment were sinking in and settling into place, I was able to research and concentrate more on how I can cope and deal with our lives. So now, when Mother shows her aggressions, I take her hand gently, look her straight in the eyes and tell her with tears and compassion, "I love you, Mom". Then we would both calm down from the frustrations that were attacking us. I could then begin to breathe and relax with her.

You see, I had to come to the understanding, through much reading and gleaning from resources of this afflicting and degenerating disease, that she also is feeling those same feelings that I was experiencing, but she doesn't understand why or how to deal with them. She can't show tears of grief or laughter. All of her compassionate emotions are hidden deep within her soul, but they are there, because she is that wonderful and loving Mother that I remember her as a young child. It is now my duty and responsibility, with love and compassion, to not only see to her physical needs but to also feed her soul.

It's a learning experience and a never ending one for me. Day to day tasks are challenging, emotions of the days are always changing as well, but I am becoming more knowledgeable and understanding of these changes and knowing that each day is a "New Day" and learning that education and love along with compassion conquers all fear and darkness of the unknown.

Photobucket
Rainbow

Compassion and Lots of Understanding

Compassion and Lots of Understanding



Photobucket

If anyone out there is care giver of a family member with an

irreversible affliction of Alzheimer's disease, I'd like to

share some words of compassion from the other side of the fence.


Please....be patient with me.

My disease is beyond my control, accept me the way I am.

I still have something to offer you.

Talk with and listen to me.

I can't always answer, but I do understand the tone of your voice.

Because I cannot remember, does not mean that I am dumb.

Be kind to me.

Your kindness may be the highlight of my day.

Don't hurry me.

Each day I struggle to keep up and understand.

Consider my feelings.

I am sensitive to shame, embarrassment, failure,

fear and uncertainty.

Please don't ignore me.

Treat me with dignity.

I am not less of a person because I have Alzheimer's disease.

Remember my past.

Remind me of my successes, values and worth.

Remember my present.

Let me do what I can do.

Break down activities into steps I can handle.

I respond to encouragement.

Remember my future.

I need hope for tomorrow.

Pray for me.

Your presence shows true compassion.


Photobucket

I too am dealing with the struggles of a love one with this disease, my mother.
She was a scholar in education and taught for 32 years. Now she spends her
days circling the words of books and watching game shows.

She was always so cheerful, giggling and laughing, baking and cooking.

She doesn't laugh with us anymore and she's not very hungry even at the best of times.

She was our cheerleader, mentor, best friend and my confidant. Her conversations would
be lively and fun with teasing and wit. So now she gets frustrated and confused,
because she can't comprehend our conversations anymore.

She was secure, fearless and confidant and taught us her strength. Now she fears
being alone and lost. She's our shadow now following in our footsteps.

Photo Sharing and Video Hosting at Photobucket

Her eyes would gleam and shine with joy when we would enter her presence.
The light in those eyes are fading and dimming as we have to tell her
who we are by name. Tears fill my heart and I swallow hard to not let them
show when she can't remember that I'm her daughter or if I have to help her
recall the names of her grandchildren that she adored and cherished with so much love.

She can't remember if Daddy (who passed away in April of this year) ever
hugged her or said that he loved her. I smile and tell her, "Yes, Daddy would
hug you, kiss you and dance around the room with you when you were near him."
All she could say was that she was glad to know this because she liked to be hugged.

Photo Sharing and Video Hosting at Photobucket

I miss my mom, the one I know so well. Now I'm learning to love the mom she is to me today, more and more every day and I'll keep with me the cherished memories of the mom she used to be and share them with her each and every day.

Photo Sharing and Video Hosting at Photobucket

glitterimageshearts3.gif picture by RainbowPainterNana

Rainbow